Just finished my pre-call/practice session for the webinar on Monday that Barby Ingel, founder of the International Pain Foundation, asked if I was interested in holding.

I met Barby a while ago when I was starting to build the foundation to launch EDS Wellness. She’s fielded my bazillions question about the real side of life starting and running a nonprofit – a job that most don’t understand.

(Yes, we often don’t get “paid,” or do not bring in thousands of dollars in donations right away. And most of us don’t start nonprofits because we can’t find a “real job,” or because we do not want one. A lot of us often work “real jobs” or run other companies while building a nonprofit.)

Baby has also been nothing by gracious, humble and more than willing to work together to find ways to help the EDS Community. Similarly, one of the main initiatives of EDS Wellness is collaborating with other EDS and like-minded organizations to broaden the resources that our community is aware of. The International Pain Foundation was started over 10 years ago and has numerous resources that can help our community live well, especially those who struggle with the various types chronic pain associated with EDS. The resources that the International Pain Foundation has been in addition to the resources that EDS Wellness has and is developing, and those of other EDS organizations.

Collaborating with organizations within our community, and those who focus on comorbid conditions to EDS helps us broaden our reach and ensure that we are able to provide as many resources as possible to as many patients as possible. Additionally, when we also work with public health organizations, companies whose services the broader medical community, and those who focus on Integrative health and wellness, we are able to push the boundaries of what has been done before and create paths that we never thought were possible.

We are stronger 2 gether.

If interested in registering, go to https://powerofpain.org/webinar-videos.

‘EDS Wellness Strategies with Kendra Neilsen Myles, C.H.E.S. – a webinar hosted by the International Pain Foundation and sponsored by Music Moves Awareness Webinar Series 2017′

‘What is Ehlers-Danlos syndrome, and how does Joint Hypermobility Relate to Chronic Pain? An Integrative Approach to Managing a Much Neglected Multisystemic Disorder’ 

Date: February 13th, 2017 at 6 pm EST

Webinar registration is through the International Pain Foundation’s Website – https://powerofpain.org/webinar-videos

To read more – see link below.


Both the podcast presentation and the recordings will be available via YouTube, EDS Wellness, and my website.